Sunday, June 20, 2010

Not a post I wanted to write

Well, I had been working on a great post about Fort Worth, TX. Baby Chang and I got to spend a week with Prairie Dad in this jewel of a town. It even had photos!

Alas on Monday after arriving home I got hit with the sick stick, seriously hit. Monday night after putting Baby Chang to bed I sat down on the couch to relax and began to shiver and shiver and shiver. The fever started shortly after that and it wasn't long before the vomiting began. Prairie Grandpa came and "slept" on the couch until 5:00 a.m. just in case I had to make a trip to the ER.

Luckily this was a week of Doctor appointments. Prairie Grandpa was back Tuesday morning to take me to the Neurologist and hang with Baby Chang. After going through a nerve test (which I don't recommend unless necessary) and a viewing of my MRI he determined there was no swelling in my spinal cord. He diagnosed me with Lhermitte's Phenomenon (the Radiation Oncologist confirmed this on Wednesday) usually associated by MS but I DON'T have MS. So I still have tingling in my legs for the time being perhaps another 6 months to a year.

Later on Tuesday I saw my Cancer ENT (not to be confused with the other three ENT's I have). He said everything looks great and I have a reprieve from him for two months.

On Wednesday I was feeling a little more like myself starting to eat more than crackers. I went to see my Radiologist. He too confirmed that I was recovering nicely and quickly. He confirmed the Lhermitte's diagnosis and told me that genetic testing was not good for NPC so we shouldn't do anything yet. In a few years however we'll probably want to get Baby Chang tested.

Then Thursday at midnight I woke up with excruciating pain in my right ear. No fear however I have an appointment with the Ear Guy of Friday, a little Tylenol and I'll be fine. Thursday morning Baby Chang and I walked to the grocery store a rather normal thing. By the time we got home you'd have thought I ran a marathon I was EXHAUSTED so I called in reinforcements. The neighbors (more about them later) came and relieved me of Baby duty for a few hours.

Friday night was rough to say the least I spent the night dry heaving/vomiting every 30 - 40 minutes and the Tylenol was giving no pain relief. Finally I switched to Advil (4 at a time) and was able to get a little relief. I sent a text to the Future Triathlete who was coming to babysit later in the day and begged her to come early. My knight in shining armor showed up about 9:30. I made my way to the Ear Doc where he promptly made the decision to put in an ear tube. There hadn't been much change in the last three weeks and now there was an infection. Once again I'll be out of the pool this time for a year...

Monday I see the Oncologist who will hopefully also give me two thumbs up. Although I forsee a lecture about my weight as I've lost 5lbs this week from the illness and I wasn't up any from when I last saw him. I will hopefully get a reprieve from him for a few months as well.

Well, it's been a tough week but I've learned a lot about the Village I've surrounded myself with. Baby Chang and I have the most amazing support network and this week the troops rallied. Even Grandma and Grandpa Chang all the way from Alaska where they are taking a cruise for their anniversary.

Just a funny side note the word I most often spell wrong vomiting, you'd think when you are a pro at something you would know how it's spelled.

1 comment:

  1. Ugh... that sounds like the week from hell. I really hope you start having more good days than bad days. Hang in there! Wish I were around to lend my helping hand.

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